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Myosuisse aims to create a network for professionals and organisations working in Switzerland for people with a neuromuscular disease (incl. Friedreich’s ataxia) or supporting research in this field.

This network

• promotes diagnostics, therapy and care as well as comprehensive professional counselling and care for people with muscle diseases and their relatives throughout Switzerland in order to enable them to lead a self-determined and equal life;
• supports the further development of the neuromuscular reference centres;
• coordinates research – namely in the area of care provision – in consultation with network partners and in particular the FSRMM Foundation, taking into account patient needs and research priorities;
  fosters the mutual exchange of information and promotes continuing education;
• raises public and professional understanding of people with a muscle disease;
• is involved in health policy to ensure that gaps in counselling and care for people with a muscle disease are closed;
• organises the exchange of knowledge on topics concerning people with neuromuscular diseases on a national and international level and makes this knowledge available to others

Myosuisse is a non-profit organisation.